2001, I called a doctor in Berkeley. He agreed to see me. After a short meeting, Dr. Smith said ( reassuringly that we would get to the bottom of this. I giggled and told him, with no disrespect, I have been told that before! He sent me away with a battery of test to be taken; the first, blood. He said do the blood test and let’s get the results before you do all the other tests.
10/23/01 Blood was collected.
10/30/01 Phone call from Dr. Smith “quit eating and consuming all forms of DAIRY! You are killing yourself! That day I stopped eating all dairy. Soon thereafter, off all meds and my seizures miraculously stopped. Who know... a dairy allergy. (Now, what I have not shared was in the prior ten years doctors told me to eat cheese for protein... every two hours! Well, that only kept me in a sick state. No doctor has verified or confirmed this, but, when I was my sickest, my "mean" blood sugar fasting was below 60. Well, your organs STARVE at that low of a blood sugar. My system was attacking the allergen, dropped my blood sugar and wella, seizure!)
I can't be the only person who has had this type of experience, and if I didn't continue to explore options, I would still be on anti-convulsive meds and not having the full life I now live.
Until about two years ago, this was my little secret. If you were having Grand Mal Seizures and didn't know the real cause of them, wouldn't you be living with a huge secret too? Now I realize how important it is to share my story… I know I am not the only misdiagnosed person living with an allergy that causes me to have seizures when the smallest amount of dairy was/is consumed.